Originally posted in May 2008
Do you have worries about Coley that you don't have about your other two little bits?
Of course. Nicoli doesn't yet speak. He is sometimes has echolalia, and he repeats strings of sounds. But still.
I fear that he will never be able to have a life. Will he ever have friends? Work? Live on his own?
Before that, will he ever be out of diapers? Will he ever listen to a story all the way through? Will he ever tell me what's wrong, in words? His fifth birthday is approaching, so In the next three years he will make the leaps that will allow him to have what I would think of as a fulfilling life. Or he won't.
Will he ever be ready for the world. Will the world ever accept him. Or will he spend the rest of his life getting sneered at the grocery stores, or the confused looks of other parents on the playground.
It's almost cruel that he is so beautiful, all big eyes and blonde curls. It draws people in. Then his condition pushes them further away, and they have further to go when they are repulsed.
It's terrifying to think about. So all I can do, is to give him every opportunity to learn and grow, just like Quinn and Genna.
He is happy in his way, most of the time. But I would really like to talk to my son, and have him, talk back.
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